In 2022, we are celebrating solidarity within the rare disease community by sharing experiences and raising awareness of the needs of others. Through this campaign we aim to celebrate each other’s strength and support and say thanks to those who’ve helped us.
We want to hear about your heroes, the people who support you every day, and the small acts of kindness that keep you going.
Check out the posts below from rare disease patients and their family and friends all over Europe and get involved yourself by using the hashtag #MyRareLife and sharing your hero today!
The My Rare Life campaign is funded and organised by BioMarin
Date of prep: January 2022 Job code: EU-MDRL-00086